Etiquette Hell

A Civil World. Off-topic discussions on a variety of topics. Guests, register for forum membership to see all the boards. => Time For a Coffee Break! => Topic started by: DottyG on May 03, 2013, 02:34:00 PM

Title: Does anyone in your home have a Cpap/BiPap/etc?
Post by: DottyG on May 03, 2013, 02:34:00 PM
I'm trying to get some info for a friend.  I want to know how many people use or have used a cPap-type device.  This is just these kinds of devices - not any other snoring-decreasing methods or anything else.  This one's really simple - that's why there's no Other category!  It's really just this straightforward.
 
(Editing the title)
 
 
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: magician5 on May 03, 2013, 04:43:00 PM
I don't want to skew the results first-answer-given, but a Cpap has been recommended for me, bought, and rejected. I can't sleep with it. AT ALL. I know, there are different mask styles, etc, but I can't sleep with it on and I can't picture doing any better with any other style. So now I have a $1000 brick. I'll take my chances.

On the other hand, I know people who swear by them.
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: PastryGoddess on May 03, 2013, 04:48:03 PM
My aunt has one and it's really changed her life.  She did say it gets some getting used to.  I think it took her about 2 weeks.  What she did was take over the counter sleep medication and when it kicked in she would put the Cpap on and then fall right asleep. 

Now she can't sleep without it
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: Klein Bottle on May 03, 2013, 04:57:51 PM
My cousin does not live with me; however, I help take care of her.  She uses a BiPap for breathing issues associated with ALS.   :(  I can get you further info about this type of machine if you'd like!    ;D
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: Betelnut on May 03, 2013, 05:38:37 PM
CPAP here.  I love it.  I was falling asleep at my desk at work (the falling mouse would wake me up) and felt very sleepy even after 12 hours of sleep.  Even after one night I could tell a difference and it took about 2 weeks to get pretty used to it.  I even use it to take naps on the rare occasions that I do that.

There are times, even after 5 years, that it annoys me (if I'm already having a restless night due to other factors) but most of the time I'm like Pavlov's dog with it.  Put it on, I fall asleep.  The only position I can't sleep with it on is on my stomach but I can sleep in any other positions.  For the first 2 weeks or so though, I did sleep on my back.
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: lkdrymom on May 03, 2013, 06:17:17 PM
I have been using a CPAP since January of 2012. It is a torture device. It takes a long time to get used to it and I don't think I sleep any better. I wake up because my noses itches and you have to rearrange the mask to get to the itch. Heaven help you if you drool in your sleep. And there are times when it feels like I am being smothered. Now the weird thing is while I get a crap night sleep with it on, I am so used to wearing it I have a hard time falling asleep with out it.

But the end result is that my husband can sleep in the same room with me. So he is happy.
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: Dazi on May 03, 2013, 07:26:05 PM
DH has a Cpap and fought me tooth and nail about getting one.  It took him several weeks to be able to sleep with it on all night.  He started with an hour and every few days he kept it on longer and longer.  Now he's conditioned fairly well and is out just about as soon as his head hits the pillow.

Best part is that I don't have to sleep with ear plugs anymore, nor feel him thrashing about in the night.
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: Jocelyn on May 03, 2013, 07:32:28 PM
I love mine. The tech who calibrated it told me that if people are borderline, they generally find it hard to adjust to, but the people who need one desperately find the improved sleep so beneficial that they adjust more easily. I was getting down into the 70% of oxygenation without a CPAP; I would wake up with my heart pounding but without any memory of a scary dream. Of course, what it was was adrenaline release because I was smothering! I can sleep without mine (especially if it's only a nap). However, when the snooze alarm goes off, I'll still keep it on, because after a night's sleep with it on, it just feels better that way.
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: cattlekid on May 03, 2013, 09:10:57 PM
DH and I both have one and can't sleep without it. It has literally changed our lives.
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: Sophia on May 03, 2013, 10:11:52 PM
DH has one, and it has made an amazing difference.  He was scary bad.  Normally you go to the sleep center two nights.  One to see if you need one, and one to calibrate it.  They were literally scared he would die at the center on his first night.  So they woke him and started on the calibration.  Instead of wakes per hour, they used wakes per minute for him. 
Both my parents have one.  We suspect my grandfather died from Apnea.  All three I know adjusted quickly.  Even my mother who only did the sleep study to get dad and I to shut up about it.
I confess that once or twice I've used my husband's when I needed a nap and I was sick with stuff in my lungs. 
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: Yarnspinner on May 03, 2013, 11:13:52 PM
Over the last eight years I have tried to get used to a cpap.  Third time was the charm.  Smaller face mask, newest machine and this time, insurance picked up the bill.  (Last two times I wound up paying the whole thing and, as someone else noted, now have two very expensive paper weights.)

The new mask is a lady's quatro and covers both nose and mouth.  Both my other masks covered nose and mouth, but they were SO huge and had so many little presure point holders I kind of felt like was...well, that unfortunate gentleman in "Alien".  The new one is approximately the size of a painter's cloth mask, is very comfortable (though I had to tighten it a bit more than I wanted) and doesn't leave marks in the morning.

I am actually wearing it every night.  Most every night...I still have nights where I fall asleep on the couch.

It has made a difference because, even though I am a night owl and will stay up until all hours (reading ehell)  I can fire up the cpap and even with four hours of sleep I feel more alive than I did after seven hours of sleep without it.  Are there days when I feel claustrophobic?  Oh, sure...but this has made a huge difference for me. 

Now if I could just make myself go to bed earlier.......
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: DottyG on May 04, 2013, 12:36:21 AM
magician, you (and anyone else that is supposed to wear one but can't get used to it and don't wear it) fall into the "used in the past" category and still count as a person in the poll.

Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: DottyG on May 04, 2013, 12:40:58 AM
By the way, stomach sleepers (and anyone that doesn't like heavy, chunky masks), try the Sleepweaver Élan (www.sleepweaver.com). It's soft and let's you move around. Much better than the plastic - or even nasal pillows.

Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: Julia Mercer on May 04, 2013, 01:53:35 AM
When I was significantly heavier, I was diagnosed with severe sleep apnea, and got a c-pap machine, but barely used it, as I couldn't get used to the air. I had people tell me that I would get used to it, but I never did. Once I lost my weight, I gave up trying, it just sits in a closet collecting dust, I did try to sell it on Kijiji (stating that whoever purchased it would have to get the prescription changed on it), but the most I got offered was I think $20-$30 or somewhere around there, not worth it!
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: selkiewoman on May 04, 2013, 03:10:52 AM
I fought the whole idea vigorously for a good 10 years, because I knew I would never be able to sleep with all that stuff on my face.  I finally surrendered because I got tired of waking up gasping and terrified - it was as if my body had forgotten how to start breathing again.  When I started using the mask, I immediately upped my sleep time from 3-4 frequently disturbed hours to 6-7-8 hours of good sound sleep.  I don't have to get up to pee and I have started dreaming again.

I use the nasal pillows.  I still don't care for the headgear and the intersting hairstyles that come with it, but I have been reading about a new system (Bella grey by Resmed) where the whole thing is held on by loops over the ears.  I would love it if that would work for me.
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: stargazer on May 04, 2013, 02:39:04 PM
If your friend wants advice about CPAP, have you also given her your experiences?  Or does she just want to know how many random people on a board she doesn't visit wears them?  It's kind of an odd question. 
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: DottyG on May 04, 2013, 03:17:26 PM
Actually, the poll is very helpful and is giving me just what I'm looking for.

And, yes, I'm giving him info from my personal experiences as well.

Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: Sophia on May 04, 2013, 03:30:15 PM
This poll isn't really designed to tell you what percentage of people use it.  Since the poll asks about the household, with no mention of how many in the household.  For example, I answered 1, even though I don't because my DH does. 
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: DottyG on May 04, 2013, 03:37:01 PM
You answered correctly then.  And, you're right, it doesn't take a percentage. I said in the first post that it really is this straightforward! Just go with it.

And I really did want random. That's why I posted it here instead of in a more controlled environment. I really do want the answers as they are here.

Have a background in statistics. Trust me, I'm getting what I'm looking for! :D

Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: gollymolly2 on May 04, 2013, 04:24:14 PM
You answered correctly then.  And, you're right, it doesn't take a percentage. I said in the first post that it really is this straightforward! Just go with it.

And I really did want random. That's why I posted it here instead of in a more controlled environment. I really do want the answers as they are here.

Have a background in statistics. Trust me, I'm getting what I'm looking for! :D

I hope you're looking for a survey of mostly women who spend a lot of time on the Internet and would be interested in clicking on a thread about cpaps. :) regardless, it's nice of you to look into this for your friend.
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: guihong on May 04, 2013, 05:02:02 PM
My husband does.  He was snoring and snorting like a buffalo before finally getting a sleep study (egged on by sleepy me), and it changed his life.  There were adjustments to keeping the mask on, but he's used to it.  He also lost a significant amount of weight, which helped.

Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: KarenK on May 04, 2013, 06:06:23 PM
My DH uses a CPAP machine, but does find it difficult to sleep. He took Ambien for a long time, which worked well, but his docs wanted him off it, so he's on melatonin now, better than nothing, but Ambien was better. It's good for him, but I hate it when it blows on me!
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: Indigosails on May 04, 2013, 06:15:37 PM
My husband uses a CPAP. He took a year after the sleep study results to get a machine. He tried a couple different masks and settled on the nasal pillows. He says he feels so much better. He no longer gets extremely sleepy at 1 in the afternoon. He will even use it when he naps because of the difference.
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: DottyG on May 04, 2013, 06:26:09 PM
You answered correctly then.  And, you're right, it doesn't take a percentage. I said in the first post that it really is this straightforward! Just go with it.

And I really did want random. That's why I posted it here instead of in a more controlled environment. I really do want the answers as they are here.

Have a background in statistics. Trust me, I'm getting what I'm looking for! :D

I hope you're looking for a survey of mostly women who spend a lot of time on the Internet and would be interested in clicking on a thread about cpaps. :)

Yep! I know our demographics here. And they're fine.

Not sure why you're not believing me that I know the conditions of the study pool! And that they're just fine. I know it's a "dirty" selection. And it's not giving a statistically clean sample. But, if I'd wanted that kind of sample, I wouldn't have posted it here and would have chosen another group.

Edited: gotta "love" autocorrect ::) changed a word I didn't want changed








Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: cutejellybeen on May 04, 2013, 07:45:45 PM
I'm trying to get DH to go in and be tested for sleep apnea- we are positive he has it, but he needs to be given a drs referral to go be tested. but first he needs a dr
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: Hijinks on May 04, 2013, 09:58:11 PM
DH and I both use one.  He got his after seeing how much better my quality of life was with mine.
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: DottyG on May 05, 2013, 01:03:21 PM
Quote
but first he needs a dr

Sounds familiar. I lost my referring doctor. So I'm in the same boat with anything that I need one for with my treatment.

Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: zinzin on May 05, 2013, 01:09:46 PM
Do you mind sharing the purpose of the poll if it's the stories you really want? Is he worried that it's rare/weird and doesn't want to try as a result?

To the topic - I don't use a machine, nor does anyone in my house. I actually don't know anyone who does.
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: DottyG on May 05, 2013, 09:27:52 PM
I welcome the stories - I'm always interested to hear of othes' experiences and learning from others. Sometimes, you can hear of a new mask or something from someone else. So the stories are very welcome. But the purpose of the thread was mainly for the poll. Just the number of people in a random group such as this that either use one or have someone in their home use one.

Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: DottyG on May 05, 2013, 09:28:39 PM
And the numbers in the poll are lining up exactly as I expected.

Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: Jules1980 on May 06, 2013, 02:42:18 PM
I have been using a CPAP since January of 2012. It is a torture device. It takes a long time to get used to it and I don't think I sleep any better. I wake up because my noses itches and you have to rearrange the mask to get to the itch. Heaven help you if you drool in your sleep. And there are times when it feels like I am being smothered. Now the weird thing is while I get a crap night sleep with it on, I am so used to wearing it I have a hard time falling asleep with out it.

But the end result is that my husband can sleep in the same room with me. So he is happy.

You might need another titration test.
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: RebeccainGA on May 06, 2013, 02:54:08 PM
I use mine, religiously. My dad has apnea, as does my grandfather, and we suspect that apnea led to the death of at least one relative on that side of the family. I have a nose only (not nasal pillow) mask, a Respironics comfortgel, and was happy with until very recently - have ordered a new one, also a Respironics, but something called a Wisp, that is supposed to be much better. I'm probably overdue for a new titration, but haven't gone in for one in a couple of years.

I get my supplies from the (uncreatively named) cpap.com - they have options for new users to get return insurance (so for a small fee, they can return the mask if it's not right for them) and also sell 'fit kits' for many masks, so if you're not happy with your mask you can try new ones, even by mail. Good prices and service, too. It's been a huge help for me, since we moved I don't have a DME supplier that I like nearby.
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: EMuir on May 06, 2013, 03:27:25 PM
I have an APAP machine that automatically tells when I'm breathing in and out. It has made a HUGE difference for me. The first few nights were easy because I was so tired, after that I took some Tylenol or Nyquil to help me sleep.  Now I can't sleep without it.  I was getting to 55% or so blood oxygen level, and not only was waking up in the middle of the night, if I ate anything within four hours of bed it would get sucked up into my mouth when I slept and then I'd breathe it in.  NOT PLEASANT.
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: HappilyInsane on May 06, 2013, 05:48:03 PM
I got a CPAP in 2008 and I could never adjust to it. 2-3 Hours into the night, my nose would stop up completely and have me jerking awake in a panic struggling to get air. I have the mask that is like nose plugs and a chin strap because I tend to breathe through my mouth. My machine also has the heated moisture and it still does that to me. I tried taking my allergy meds closer to bed time instead of morning and using a light cold med at bedtime. Nothing seemed to help. Then DH got sick and I had to be able to listen for him during the night and I just gave up. I was on the low end of the scale when I was diagnosed, I think it was like 5 times an hour.

I keep thinking I will try it again but something always stops me (allergy season, colds, DH health issues..). It's still on the night stand and occasionally one of the cats step on the power button. It's entertaining to watch them scatter when it comes on then come creeping back to investigate it lol.
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: Palladium on May 06, 2013, 08:48:54 PM
My DH uses a CPAP machine every night. I'd been telling him for a couple of years that he had sleep apnea because I kept hearing his breathing stop at night, but it took him becoming completely exhausted, daily headaches from lack of oxygen and nearly falling asleep at his desk for him to get a sleep study done. He was diagnosed with severe obstuctive sleep apnea, and he needs a fairly high pressure on his machine, thankfully he tolerates it very well. He didn't have any trouble getting used to it and felt much better as soon as he started, much better sleep and no more headaches. He even takes it with him if he's going to be away from home for just  1 night and last year we lugged it around Europe for 8 weeks, totally worth it.

He has a machine with a humidifier and he finds the trick is to use a nasal spray to clear his nose before going to sleep. I think you also have to spend time finding the best mask for you. You can also get special pillows for using CPAP that make it more comfortable to sleep with the mask on and make it less likely that you'll dislodge it in your sleep.
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: dietcokeofevil on May 06, 2013, 09:33:50 PM
My DH was diagnosed with severe sleep apnea and attempted to use the BiPap machine.  It just did not work out for him.  The setting was so high, his doctor told him it was equivalent to driving down the interstate at 65 mph with your head out the window.  Even if he did fall asleep with it, he would remove it without actually waking up.

He ended up have the UPPP surgery along with a tonsillectomy.   That helped enormously.  He no longer snored and was finally getting a good night's sleep.  However, another sleep study revealed that he still had too many sleep apnea episodes while sleeping on his back.  So then he went to a sleep apnea dentist and got a mouthpiece which has took care of the problem.
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: Hijinks on May 20, 2013, 04:08:11 PM
Quote
I got a CPAP in 2008 and I could never adjust to it. 2-3 Hours into the night, my nose would stop up completely and have me jerking awake in a panic struggling to get air. I have the mask that is like nose plugs and a chin strap because I tend to breathe through my mouth.

I also sleep with my mouth open and I have severe obstructive apnea.  I had to get a full face mask that covers mouth and nose in order to use it - just could not retrain myself to sleep with my mouth closed.
Title: Re: Does anyone in your home have a Cpap/BiPap/etc?
Post by: Hillia on May 20, 2013, 04:58:55 PM
I just got a cpap and am still getting used to it.  I didn't have severe apnea and wasn't having major problems with daytime sleepiness, so I'm not yet seeing any major improvements.  Right now if I'm really tired when I go to bed I won't put it on, because it still takes me time to get adjusted and fall asleep.  I have the mask with the nose pillows; fortunately I don't sleep with my mouth open so I don't need a chin strap.