I read. That's where I go for hope and comfort. So I went and did a lot of reading in disability studies (think women's studies in college).
I was unlucky in that a minor injury led to permanently damaged nerves. There's no predicting this, it just happens sometimes for reasons doctors can't explain. I went from athletic to in a wheelchair in 4 years because I couldn't take the pain. It took a long time to first accept that I was disabled, and now to relearn and expand my limits. For a long time, I had to be really careful. Recently, I found a solution for the pain, and it's allowed me to resume a life that is almost normal. But, I've changed so much that I can't even imagine the person I would have been if this hadn't happened. I've experienced some of the best and worst of humanity as a result of being disabled. It's opened my eyes to people who are suffering, and it's made me aware of how prejudiced our society still is.
For me, the spoon theory helped a bit. It is a way to communicate to people what I have in the tank that day, and also for me to remember that yes, I can do this, but it will mean not doing something I want to later.
Stop thinking it's your fault. If you need to, I encourage you to see a therapist, not because I think your symptoms are a result of mental issues, but because when dealing with all this you'd be crazy if you didn't struggle from time to time. See if you can find someone who specializes in helping people cope with injury. You might also look into hypnosis to see if it can help with symptom control.
Finally, I'll say again that it's worth looking into symptom control. For me, a lot changed when I saw a pain management specialist. They weren't able to cure me, but they didn't try. They tried to help me feel better, even if I didn't have a diagnosis.
Feel free to PM me, I'm happy to "listen".