I know a guy who was diagnosed at age 9 with diabetes type 1. He was always babied by his mother and when he once went to Disney with his best friend and no parents when they were in their early 20's, this guy ended up collapsing due to low blood sugar cause he hadn't learned how to manage it despite having it for at least 10 years up to that point. And from what his friend told us, it wasn't a case of something affecting him differently than he'd expected (my brother's also diabetic and some foods cause his bs to spike more than others)
Well he married and suddenly monitoring his diabetes became wifey's job, not his, but he'd fight her whenever she'd try to look out for him. He'd give himself the shots but she had to remind him to check his blood sugar and eat good food, not the junk food that sent his bs on a roller coaster ride.
Now they're divorcing and he works about 10 hrs a week so he brings in money but she makes more. He makes enough to buy himself food but he spends it on junk and toys and copius amounts of alcohol. She once said that she would just buy food for herself and lock it up to attempt to force some responsibility for his care on him and he told her that if he died of insulin shock she'd be found guilty of murder.
He's also refusing to sign the papers because he doesn't want to have to be left to learn to take care of himself.
What was wrong with his mother? Weren't there any educational services in their area? or did she just have a pity party for her poor baby, or maybe think it would go away all by itself?
I have always known that my daughter's endocrinologist was amazing, but this story sends her WAY above the rest. She helped found a summer camp for kids with medical problems, and between her and that camp, I have a very well educated and very independent child. Plus I am diabetic myself and took plenty of local classes too, given FREE by the local hospital - resources are out there, and even better ones since the advent of the internet.
I am still boggled by this story. (Continuing to shake head in disbelief)
Actually, just thinking about that mother is beginning to make me angry.
It makes me angry on the wife's behalf too but on the other hand she enabled this mindset for the last 13 years they've been together, 10 of which they've been married so she knew he was like this going into the marriage. From what my friend told me of her MIL, the woman seems to think that friend should have taken over for her in looking after her son's diabetes. He was the youngest of 3, the only boy so I think all of those meant to her she had to baby him.
My younger brother was diagnosed at 11 and as much as I complain about my parents, I have to give them this, they did much, much better by my brother. He was giving himself his own injections before he even left the hospital. My parent's anniversary fell the same weekend. I'd come home from college and told them "Go celebrate, I'll stay with brother and make sure he does what he needs" which they appreciated.
Mom educated me before they left on how much insulin he needed based on what the glucometer read, but as it turned out I didn't really need to know because he was able to take care of it all himself. By the time he was 12 he was on the pump and managing that on his own. He was very active in sports in high school, once even the captain of the wrestling team, which definitely helped his bs levels and while his AIC wasn't always perfect, he did pretty well in managing his diet.
He's now 27 and while he will drink he's smart enough to know just how much. One time we had them over for dinner and his gf had some ice cream and he just took small bites off her ice cream bar. If we go across the street to the ice cream store he usually just buys a diet pepsi for himself.
I think the only time Mom gave my brother insulin was when he was young and sleeping because he'd had pizza which would cause his BS to spike a few hours after eating it.
And oh, my brother went to a diabetes camp too. I think it might have been in Virginia too so it might have been the same one your daughter attended.
Both my brother and I have endocrine issues, incidentally. He's diabetic, I have hypothyroidism. The only other person in the family who had type 1 in our family was a great uncle who died at the age of 4 because they didn't have insulin then.